Sunday, April 26, 2009

There's No Place Like Home

We finally made it home! They released us from the hospital on Wednesday evening, and since then it has been a flurry of appointments, diaper changes and most of all, eating. Our entire day and night is consumed with feeding this baby. He has to take in at least 400 cc's (13 1/2 oz.) every 24 hours in order to gain weight. Our goal is an ounce of weight gain every day. This doesn't sound like very much, especially over a 24 hour period, but when you have feeding difficulties it seems like gallons. He's doing well with his bottles, but he did come home with a feeding tube, so whatever he doesn't finish by mouth we feed through his tube.

On Thursday we had our first appointments with the Cranio-Facial Center at Scottish Rite and with our pediatrician. We met with the nutritionist and the occupational therapist at Cranio-Facial, and both were very nice. We go back on May 20th to see the plastic surgeon and the therapist again. We will see our pediatrician again next Thursday for a weight check and to see if we need to increase his intake based on his weight.

Peyton had a tee-ball game on Saturday, so Parker got to enjoy some time outside. Peyton's team has had a rough start this season and hasn't won a game yet. They tied on Saturday 4-4. Yea! At least it wasn't another loss!

Before we left the hospital on Wednesday Parker got to meet his Grandpa Gardner! Brian's Dad came through town after a golf trip to Myrtle Beach, so he came by and spent a few hours at the hospital with us. It was great to see him. He lives in New Jersey so we don't get to see him very often. I was so glad he got to meet Parker while he was still so small.

I think that's it for now, time to go feed a baby again.



1 comment:

Anonymous said...

He is just sooo precious. I have been following your blog thru the one you had set up for Brian & Christi. Your little guy looks like a little man...so sweet. We will keep him and you in our prayers.

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